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Anyone know anything about Brian since the short note on the 27th??

No, I haven't heard anything either, but did send an email to them yesterday, I think! I pray they are all okay and getting through these trials with Brian including sleepless days and nights! It has to be very difficult on them all! Lifting them up to God in Jesus' name for better times and less pain with more rest! Amen! May God Bless! :angel: Ma Betty
 
...I had been up all night with Brian the night before because he just can't sleep because of the pain. Then, he had an accident around 11am (loose bowels) resulting in me having to completely change his bed, get him into the bath, mop floors and wash his bedding. He had a doctors appointment for 3pm and at 2, I got him dressed and ready to go to the doctors. I loaded the van with his medical supplies and books for him to read and then went back in to get him. As I was wheeling him down the hallway he had another accident and we ended up having to re-schedule his appointment. By the time I had him cleaned up again it was close to 3 o'clock. Brian was really depressed about it and all he wanted to do was sleep. He did finally fall asleep sometime that afternoon and woke around 7pm. He said he wanted to go to the store and get a couple of books he had been wanting. We were excited that he wanted to get out of the house but as he was re-adjusting himself in the wheelchair he pulled a muscle in his right side. He was now in miserable pain from his side and the tumor pain!! I helped him back into bed and now in addition to all of the pain he was in he was also disappointed because he wanted to go to the store! Giant tears streamed down his face and it was enough to tear our hearts out. Carol told him to relax, that she would go get the books and when she returned she also had some Lego kits for him to build. Man...the smile on his face did our hearts good. It didn't help the pain though. I was up with him again all night Thursday night and Friday I was pretty much a zombie. I was so tired I wasn't sure what day it was. To be honest, I'm still not sure.

Last Tuesday we had to have his g-tube changed at the pediatricians office. The Mic-key button is a valve with a balloon on the inside that is inflated with water to hold it in place. The outside has a valve that his feeding tube is attached to. Every 6-12 months this needs to be replaced and it is always a traumatic experience for Brian. And us. I don't ever want to put him through that again but I know we'll have to. They say it doesn't hurt but I dare say the ones making that statement don't have a hole the size of a dime in their stomachs. By golly, if Brian says it hurts I believe him! It took three nurses and the doctor to hold him. After that we had to go to the ER and have it x-rayed to make sure it was in the proper position. While we were there they also x-rayed his right shoulder for a posiible fracture. Did I mention that sometime before Tuesday he had hurt his shoulder? Thankfully, the tube was in correctly and the shoulder x-ray was negative.

Now, after typing all of this I realize why I haven't updated the Carepage. I'm worn out!

Carol monitored Brian for me last night so I got about 5 hours of sleep, about the same amount of sleep I got the previous three nights together. I feel like a new man.

Through all of this, God has blessed us. He gave us another day together. And that is a good thing.

Thank you...dirtdigginlady...for asking!!

God bless all of you for keeping us in your thoughts and prayers!!

Doug
 
Thanks Doug for taking the time to update Brian's progress and I know you must be really tired and worn out! I am glad you are all still together, too! May God be with you each and grant you additional time together but with peace, comfort and much needed sleep and rest! We love you, Brian! Praise God and Thank You, Jesus, for hearing our prayers for Brian and helping to ease his pain and for all to get more sleep! Amen! :angel: Ma & Gamma Betty
 
For the update, for the dad you are, and for you love of Christ!
 
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