Brian's Battle - 02/05/10 - And More Pain

[Pete in MI]

And more pain.

Posted 23 hours ago

It hasn't let up all day and he is miserable. We have increased his doses of pain meds to every 2 hours from four hours and it doesn't seem to help. Brian is getting very frustrated.

He takes a medicine designed to minimize nerve pain every 8 hours. His pediatrician has increased each dose from 5 mils to 8 mils to see if that will help.

It looks like we're in for a long night.

We heard from the National Institute of Health today. They diagnosed and named Brian's disorder (gnathodiaphyseal dysplasia) back in 2001 from his case study. I asked how the research was going and they said that "...regretfully, little has been done." They've pretty much hit a brick wall.

We watched Left Behind together last night and plan on watching part II tonight if he can. He really struggled last night, he hurt so bad.

Thanks, as always, for your thoughts and prayers!

Doug, Carol and Brian

 

[Mike from MI "Iron Brigade"]

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[seeker41]

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[7centsworth]

Will pray.

 

[Digdoug]

...we appreciate your prayers. He is still in a lot of pain and it is so frustrating watching him suffer and not being able to do anything for him. If the pain doesn't let up over the weekend we may have to explore other options. We're still waiting to hear from the plastic surgeon at Vanderbilt. We don't think surgery will relieve any of the pain though.

Thanks again for all of your prayers!!

Doug

 

[Paul(NWOH)]

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[DK]

You know we love you guys and you all are always in our prayers.

 

[Anonymous]

Hello Doug, I am praying for Brian! Hold on to Jesus' hand and don't let go and He will take him home to glory (like He did, Cliff) when it is his time! I know that you all want him healed, but sometimes it is in God's plan to heal Him when his spirit goes back to God Who gave him life! Keep the faith and know Jesus is with Brian and comforting you all with His wonderful love! May God Bless and move upon Brian right now and ease his pain by lessening it more and more with the ability to get peaceful and painless sleep and for each to get some much needed rest! The peace of God is with His Children so don't give up and keep the faith that He is working it all out for your good and for His purpose! His plan when fulfilled is the best for us all! My heart aches with sadness but I know Brian will live in the sweet by and by and we will see him again where there is no pain, sickness, suffering or sorrow forever more! Amen! Love in Christ, Ma & Gamma Betty

 

[Mike Chgo area]

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