Pete in MI
New member
Serious Pain
Posted 8 hours ago
The last couple of weeks have been very rough for Brian. The pain in his face and head are worse than ever and the pain meds aren't working.
Carol has tried to set an appointment with a pediatric pain management team but we have found out there is no such team, here or in Nashville. I tried calling his pediatrician this evening but the nurse on call said all we could do was try make it through the night and call the doctor in the morning. She was very understanding and sympathetic with our situation and felt bad she couldn't provide any help.
We are also going to call the plastic surgeon and see if we can schedule a tumor reduction surgery. We don't know what else to do.
The good news...
...Brian was nominated to have a dream fulfilled through The Dream Connection and we met with them yesterday afternoon. They asked Brian to name three things he would like to have or do and they would take them before the board for approval. He was very excited about being nominated and I will give more details later. They said it would be a few weeks before they would get back to us.
http://www.dreamconnection.org/index.html
We are all very tired and stressed from lack of sleep and the frustration of not being able to control Brian's pain.
We know you are all praying and we appreciate your prayers very much.
Thank you,
Doug and Carol
Posted 8 hours ago
The last couple of weeks have been very rough for Brian. The pain in his face and head are worse than ever and the pain meds aren't working.
Carol has tried to set an appointment with a pediatric pain management team but we have found out there is no such team, here or in Nashville. I tried calling his pediatrician this evening but the nurse on call said all we could do was try make it through the night and call the doctor in the morning. She was very understanding and sympathetic with our situation and felt bad she couldn't provide any help.
We are also going to call the plastic surgeon and see if we can schedule a tumor reduction surgery. We don't know what else to do.
The good news...
...Brian was nominated to have a dream fulfilled through The Dream Connection and we met with them yesterday afternoon. They asked Brian to name three things he would like to have or do and they would take them before the board for approval. He was very excited about being nominated and I will give more details later. They said it would be a few weeks before they would get back to us.
http://www.dreamconnection.org/index.html
We are all very tired and stressed from lack of sleep and the frustration of not being able to control Brian's pain.
We know you are all praying and we appreciate your prayers very much.
Thank you,
Doug and Carol